Altruistic Data Sharing Under the Data Governance Act: Societal Benefits and Regulatory Challenges

Here is a short summary of the provided document on altruistic data sharing under the European Union's Data Governance Act (DGA):

Summary:

The Data Governance Act (DGA) introduces the concept of altruistic data sharing, allowing individuals and organizations to voluntarily share data for societal benefits. Altruistic data sharing requires informed consent, data anonymization, and third-party oversight. The sharing of data can have significant benefits in healthcare, sustainability, and social sciences. However, it also raises ethical and regulatory challenges, including data misuse, data equity, and public perception and trust. To achieve its intended aims, altruistic data sharing must be balanced with ethical considerations and governed by transparent and multi-stakeholder engagement.